This International Women’s Day - here are the words from one mum

This is from Linsey, who's daughter Dixie attended our Hawthorn Specialist Playroom. It's from back in 2015, but you can keep up with all Linsey and Dixie's goings on in their blog.

I would like to round off my year in 2015 a little differently.

Not with a summary of the rollercoaster ride we found ourselves on, that’s certainly not for the faint-hearted.

Not with pointless & meaningless New Years resolutions that come February will be long forgotten. (Seriously does anyone stick to them all year – or even remember them?!!)

Not with a projection on 2016 or what I want from it going forward (that’s for another blog I’m sure 

No I want to round up 2015 with a bunch of thank you’s to those who have helped us through such a challenging year.

The biggest thank you must go to our families. Without your endless support, this year would have been so much harder. Without your generosity we wouldn’t have been able to provide Dixie with extra physio. Without your help we couldn’t have got through our hospital stay nor appointments. Maisy wouldn’t have always got to school or been picked up. Dixie wouldn’t be the best fed kid in town. You have no idea how much we appreciate all that you do to maintain normalcy for Maisy.

We love you all  

Thank you friends. I’ve made some pretty good ones this year and I want you to know how much you’ve helped me in my journey. Thank you for caring about us. For listening. For making me feel that I’m not alone. Thank you for letting me rant, for the advice and help on feeding tubes. For being there. Always.

Thank you to those who didn’t shut us out despite it being an easier option. Whether you’re in my real life or a Facebook friend, you have all played a part in my surviving this year. And ending it feeling pretty positive.

I love you  

Thank you to the amazing charities that help & support families like us.

To the charity Unique for working tirelessly on raising awareness of rare chromosome disorders and providing accurate information on many of these disorders for us parents. Thank you for helping us connect to other families and giving us an outlet.

To Mencap Leeds for providing Hawthorn family support. A place much needed for so many families. Thank you for being there and bringing some of the nicest people into my life.

Thank you to Dr community. For always being positive. Never focussing on Dixie’s weaknesses. For making me hope that Dixie will have a bright future and not putting a death sentence on her or worst case scenarios.

Thank you to our play therapist. As the only consistant therapist in our lives this year, you have given me self belief. In those times I’ve blamed myself for Dixie’s slow progress, you have made me see how far she’s come. And that somehow I’ve played a part in that. Thank you for your enthusiasm and for believing in us. And for being there.

Thank you to our community nurse. For building my confidence in handling Dixie’s new medical equipment. Thank you for listening and supporting us.

We love you  

Thank you to those who follow Dixie’s progress. Who are interested in her. Who read my blog because you care enough to want to understand how I feel. The blog that started out as a way to let people know how Dixie was doing so I didn’t need to feed it back individually. But to me has become so much more.

Lastly thank you to my wonderful girls and Daddy L. Dixie for just being you, for fighting hard. For giving me hope. Maisy for being my little diva and keeping me on my toes. And for loving Dixie as your little sister. Daddy L for stepping up more than I ever imagined. For being strong when I’m feeling weak.

I love you all 

Happy New Year 

 

Read more from the blog here - Dream Big for Dixie

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